Principal activities of the company

We exist to assist, advise and inform people with Charcot Marie Tooth in the UK, in addition to this we aim toImprove communication and services for membersIncrease awareness of Charcot Marie Tooth in the medical profession and the public across the UK Generate positive media coverage to help people affected by Charcot Marie ToothReach more people with Charcot Marie Tooth through increased membershipSupport medical research into Charcot Marie ToothRaise funds to further the above aimsObjectives and activitiesObjects and aimsOur objectives areTo provide the best possible Information and Support Service to our members by phone, email, letter and in person, and to support this with high quality, reputable information, regularly reviewed and updated.To help safeguard and strengthen the CMT United Kingdom's membership and to enhance its reputation as a leading charity in this field.To support and promote positive communications within the organization and mutually beneficial engagement with members via a website, social media presence, a lively full colour magazine, and occasional e newsletter. To encourage members to attend events which give members the opportunity to network with each other, and to learn from medical professionals, many of whom are leaders in their field.To provide activities for children and young people living with Charcot Marie Tooth.To develop stronger partnerships and mutual understanding with other groups and organizations both nationally and internationally.To support medical research which will improve treatment of the condition with the ultimate goal of discovering a cure.To attend events and activities, which build on opportunities that are relevant to the CMT United Kingdom's mission.To support the achievement of the above by maintaining high levels of management and financial probity.Objectives, strategies and activitiesSummary of the main achievements of the charity during the yearCMT UK took part in theRare Film Awards , An animated film was produced by students studying at the University of Greenwich. The film was short-listed in the 'Best Aspiring filmmaker - Charity Collaboration' Chief Executive Simon Bull attended the awards evening at the Regents Street Cinema in February 2020. CMT Kids have embraced the use of Zoom during the pandemic and have kept in touch with members by hosting on-line activities.This year the AGM was held on-line due to the pandemic. This was successful and received positive feedback although attendance was not high.The CMT Awareness month was held in October ili line with our partners in Europe and elsewhere. This was a successful campaign. This year the campaign was commenced earlier leading up to the awareness month. CMT UK commissioned seven exercise videos for people living with CMT. This were completed and made available to members.The charity took steps to prepare for working from home due to the pandemic and was able to make a fairly smooth transition to doing so. Through the use of remote access to the computer system, phone transfer and on-line meetings services were maintainec The use of an on-line meeting platform has allowed Regional Support Groups to continue meeting and they have become an important part of the charity's offer to members.

Political and charitable donations

A grant from the Sylvia Adams Charitable Trust through the Breaking Down Barriers programme has enabled CMT UK to reviev and analyse its reach into the BAME communities and to work on building records we hold and to take steps to improve the charity's accessibility. CMT affects all ethnicities and CMT UK aims to be accessible to everyone. In line with this we have been working on a membership questionnaire, producing a new information leaflet and reviewing staff training.Justgiving.com continues to be an incredibly useful tool for those fundraiser for CMT United Kingdom with over 30 new pages created this year, and over £19K including Gift Aid being raised during 2018/19.We are extremely grateful to all of the individuals, charitable trusts and corporate supporters who have supported us this year without this significant support we could not offer the activities we do. Our members and supporters have continued to walk, run, cycle, climb mountains, host picnics and parties, and engage in lots of activities to raise funds for us every year. This allows us to continue with our work to advance the aims and objectives, pays support costs and assists with new initiatives. There are too many of you to mention, but we would like you all to know that your efforts are greatly appreciated.

This report was approved by the board of directors on 20 July 2021
and signed on behalf of the board by:

Name: Anton James
Status: Director